“Go play the piano,” Mama’d say. She knew it was a good diversion, she knew I could take the frustrations and disappointments of my teenaged life out on the long row of black and white keys. So I’d sit at our antique white upright and let all the pain flow from my heart, into my fingers, as I banged out all the verses of “Leaning on the Everlasting Arms” or “I Need Thee Every Hour.”
Now, Mama has been gone one month. The walls of family are gone, too. The pain is stifling, and the only keys I have are short rows of black ones that silently type words and sentences on a lighted screen. I have a voice that has grown edgy and sharp and angry in recent days, and I choose to linger with it for a while and see if it sticks or if it passes. Grief can do that. Especially when new grief comes on top of another grief still in the process of being resolved. I lost a husband to a catastrophic death 15 months before I lost a mother to a catastrophic death.
I have made the following statement and I will say it again: I am going to cultivate some hemlock. On my 70th birthday, if I live that long, I’m going to have a big celebration, and then I’m going to take the hemlock, or smoke it or do whatever it is you do with it and be done with life. This is an ugly world, of horrific natural processes. This is not a world to grow old in. Life ceases to be revered and respected by others when gray hair comes in and wrinkles show up and Medicare kicks in and the body gives in to slow and chronic deterioration. It seems that old people have no value. I’ve been with my mother to doctors’ offices and listened as the staff talked to her like she was a four-year-old. “Here, Honey, sit down now and fill out this paperwork,” they say in a slow, loud, high-pitched voice. And I want to say, “You damn fool, she’s eighty, she’s got four college degrees and is Kappa Delta Pi, she can hear, talk to her like she’s an adult, show some respect,” but I don’t, because society wants me to be quiet and take it, so I just throw a glare over my shoulder, then smile like the sweet Sunday School girl my sister expects me to be so I won’t embarrass her when she has to take our mother back to the same office.
Mama suffered the last two years of her life. Her back hurt, her stomach hurt. We couldn’t figure out what would make both hurt. Was it the concrete block she had lifted in August of 2007? Was it the fall down the step into her den? Doctors couldn’t figure it out either. “It’s my colon,” she’d say. “And it’s pushing on nerves and hurting my back.” I played doctor and set her diet and told her to take Milk of Magnesia. The doctor told me three months before she died that all old folks obsess with their bowels.
One year ago Mama hurt so badly and couldn’t ride in a car because of being bounced around that she didn’t want to go anywhere for Thanksgiving, so we left our 87-year-old mother home alone — the first holiday of her life to not be with family, and sadly her last. The Christmas before that, she was so miserable that she made my sister and brother-in-law drive her home from their house on Christmas morning. So last Christmas, pain or not, we made her take a two-hour trip to be with us at my son’s house. Her pain and suffering intensified and for the last year, it was all we ever talked about till it got to the point that I told her in exasperation, “Mama, you are one big colon. You’re not a whole person any more. You’re just a colon. That’s the total existence of your life and our conversations.”
Her doctor didn’t want to do a colonoscopy because of her age. I called and requested a passive test like a CT scan to rule out cancer or blockage or diverticulitis, but my phone call was never returned. I was enraged and cussed and complained about it but didn’t pursue it because my sister didn’t want me to act unladylike and yell at the doctor or his staff.
That CT scan came three months later, when my sister in desperation took our mother to the emergency room one Friday night. The radiologist’s report said there were worrisome signs of colon cancer, lung cancer, and follow-up with other tests was recommended. This was never divulged to my mother or the family. Two months later a colonoscopy was finally recommended and scheduled and showed a blockage. Laxatives were recommended.
Mama had dementia, too. It had been coming on a long time. It began as she obsessed with certain issues that bothered her, like Muslim women who were circumcised. Then she began to lose her words. She couldn’t pick out the right word to use in the right place, so every other word of every sentence was “thing.” I couldn’t find that thing that turns on the thing over there on top of that thing. [The remote.] My sister had pushed for two years to get her into a nursing home. I refused. It was my preference to leave our mother at home. If she falls, so be it. If she burns up the house and herself with it, so be it. Hire a part-time caregiver and let her stay at home where she is happy. Let her live out her days and take what comes naturally. We called Home Health for in-the-home care, and they tested her, and said she needed 24-hour care. We had to send her to a Senior Care psychiatric unit for 16 days for evaluation. She’s confused, they said. She only answered 18 out of 30 questions right. They also said she had lung cancer and after a bone scan, we were told she had bone cancer.
So I lost the battle for at-home care and helped my sister put our mother in a nursing home. When she entered the Home, she was walking, talking, socializing, laughing, strong, peppy, somewhat confused, agitated at times, and fought those who got in her way. In 23 days, she was dead.
Two weeks before she died, she and I had a long phone conversation. She was laughing and slurring her words and not making sense as she talked. “Mama,” I said. “Have you been drinking?” She laughed, and I laughed. “I’m ruuuuuuuum,” she said. “I’M RUM!” Then we spent fifteen minutes simply laughing out loud. My sister said she used that word because she used to drink rum and coke. They were upping her morphine. Quickly, it got to the point that she couldn’t talk at all, and she couldn’t walk at all.
I was with her when she gave up her fight to live, one week before she died. She was lying in her bed, alone in her room, writhing and moving from side to side, moaning, and literally scratching the wall beside her in long desperate strokes. The nurses came in and forced her into a wheel chair and took her to a common room where they tried to feed her sweet potatoes and peas, which turned out to be the last meal of her life. She was uncomfortable in her pants outfit and pulling at it, holding it away from her and constantly moaning, so I asked the nurses to change her into a gown. She slapped at them and told them to stop. Another nurse came in with a shot for agitation and stuck it in my mother’s thin arm. And then this once strong woman who hadn’t been able to find a single sensible word all day quickly found some words and uttered her last sentence and gave up her spirit. “Oh, well, I just don’t give a damn.”
The coroner wrote on her death certificate that she died of lung cancer and bone cancer. But I know she didn’t.
And I am left with questions.
What really happened to my mama? Did she get good medical care? Is this what I have to look forward to in thirty years? Will the doctors ignore my complaints, too, and will my children stick me in a home because nurses in Home Health say I’m confused? Will they put me flat on my back and shoot me up with enough morphine to kill an elephant?
After retrieving Mama’s doctors’ records and test results from appropriate facilities, I learned that her tests were not definitive. They said there was a possibility of lung cancer, a possibility of bone cancer. But the defining tests were never recommended or carried out. So whose idea was it to put her on morphine? Whose idea was it to render her to a semi-comatose state? Was this the only way to manage her pain? And why the hell was she IN pain? My God, nobody ever cared enough to pursue it to an end result and find out! Was her life worth no more to anyone than that? As I said before, old people have no value. Shoot ‘em up, put ‘em in a stupor, lay them flat on their backs, shut ‘em the hell up until they die — that’s the art of medicine.
God, I need some everlasting arms to lean on because I know for a fact how my mama died. She died of massive pulmonary embolisms. I don’t know what caused them. She did have lung cancer. She also died of intestinal infarct — she had a blockage in her colon, and her intestines exploded.
How could this happen? In the 21st century, is this all we can expect?



